Scarlett Doing Well

June 20, 2011 scarlett1prettyprincess

I'm ready to loose the Tinker bell wings.

Scarlett is still doing about the same as she has been. Other then some tweeks to her medication and a slight increase to her oxygen at night,she is only on oxygen when she sleeps at night. We appreciate every day we have with her and we enjoy our time to the fullest.Its difficult sometimes because the thing we cherish the most is the time we’ve been given with her,it is also the thing that is going to make this harder and harder as time goes on. Like every other two year old her personality changes and grows daily. Although she doesn’t speak she lets you know what she wants and her eye-roll lets us know when we’re bugging her. She keeps us entertained with games of catch,which is her favorite game. If your not playing catch she’ll keep throwing stuff off the couch until you start throwing it back.  Its impossible not to marvel at the things she does considering everything she has been through. We want to thank everyone for the continuous prayers and well wishes,God Bless You All and I will post again soon.

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