UN-HAPPY ANNIVERSARY

June 28, 2011 scarlett1prettyprincess

Today was the second anniversary of Scarlett’s diagnosis, a phone call that has replayed in our minds thousands of times but yet still doesn’t seem real. That day has touched our lives in so many thousands of ways, many that we don’t even know yet. Watching Scarlett play with her new favorite toy, a laptop that she bangs her hands on as if she’s typing a couple hundred words a minute and watching her get mad at an unmanageable hair just like every other girl also makes it hard to believe that this is real. Scarlett is doing pretty well you can tell when her meds are kicking her butt she can fall asleep sitting up in a matter of seconds. Her strength still astounds us even though she can’t move her lower body she will stretch for a toy till she almost falls over and she’ll let you know if she drops it and wants it back.

 

The thing that saved the day from being very depressing is the fact that it is also her brother Aiden’s 5th birthday and he was so excited and his sister loved his little bubble making machine. This day will probably continue to be very strange for a long time the range of emotions from happy to sad and back to happy is an exhausting thing . Thank You for your continued prayers and God Bless you all.

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