Hi everyone

August 9, 2011 scarlett1prettyprincess

After quite some time  without very many changes, Scarlett has been going through a few in last couple of weeks. For the last week her biggest problem has been her body temperture. The tumors won’t let her body control its own temperture. Her body is always hot which caused her to break out in a bad heat rash mostly on her legs.Then on Fri. night she had a big red blotch break out on her right knee which has spread down below her ankle. At first they we’re not sure if it was an infection of some kind or a blood clot. As of today they said it was not a blood clot which is great news.

Other then the last few weeks Scarlett’s changes have been subtle, she gets alittle more oxygen at night and a few more breathing treatments. The people from Hospice believe her biggest problem as she progresses will be the same problem since the beginning her poor little lungs. Keeping them clear is very important.

Please understand that all is not terrible our little princess still is doing pretty well, she plays all the time and according to her mom (Sara) she may not talk but she still is going through the terrible two’s. She likes to play with Sara’s phone but doesn’t like when it rings, when it does she throws it. Just like she was since the very begining Scarlett just seems to take everything in stride she just keeps playing and watching her shows and battleing like the true Warrior that she is.

We told her brothers (Gaige and Aiden) last week that Scarlett’s cancer was back and that she was going to heaven. Gaige is 8 yrs old and he had many questions including “how can she die she’s only 2 “. Thats when we all wish we had Scarlett’s strength, some questions even grandparents shouldn’t have to answer. Thank you for caring for our girl and thank you all again for your prayers. With her health changes I will try to keep everyone informed as often as possible. God Bless You All and please appreciate every day when they seem to get closer to end they seem so short.

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